Action Duchenne Support

One of our pupils was diagnosed with Duchenne muscular dystrophy in September 2021 - just after he turned 7 years old. Due to his late diagnosis and her experience of a lack of support initially his Mum changed her career and started working for a charity called  Action Duchenne. She came into school this morning to thank the school for our support and tell us more about Duchenne and the charities work. We will also be teaching the children age appropriate information about the importance of our muscles in lessons. 

Who are Action Duchenne?

Action Duchenne has a very clear vision: a world where lives are no longer limited by Duchenne muscular dystrophy.

We have three core objectives and are proud to spend 87p in every £1 raised on our charitable activities:

• Developing effective treatments for all by funding research, supporting clinical trials and campaigning for access.
• Building a community by uniting and supporting families, educating about Duchenne and raising the profile of the condition.
• Striving for a more inclusive society promoting the importance of human equality, day to day acceptance of disability and accessibility.

While we hope that research and clinical trials will one day lead to a treatment, or cure, for Duchenne, we believe it is vital to support families living with the condition today. We support families from diagnosis through their whole Duchenne journey.'

https://www.actionduchenne.org/about-us/our-vision/

Watch the charities award winning video 

https://vimeo.com/user126293461/weareactionduchenne 

Show your support for Dougie and all other children living with Duchenne and donate online here 

https://www.actionduchenne.org/donate-now/ 

Our children supported the charity with cash donations.  Once a total is known it will be published.